Shower, and shampoo this morning.
Everyday, I beg nurses to get a shower in the wide shower room (only one available for around 30 patients), and they always manage to let me getting a shower, which is nice from them.
After that, I had my game gear changed. As the concerned scar is near my left ear and that tape is used to make everything hermetic around the scar, it was quite a pain to remove tape on my hair >_<
Then, cleaning of the pus inside of my mouth ... as usual, some pus is accumulating, and scar doesn't want to close ...
Read more Treatment report (2014/08/08)
Shower this morning, yeaaah !
Because of scars, feeding tube and my new negative pressure device, I can't shower around head, but it was better than nothing.
BTW, here are some pictures of what I currently carry with me :
Bottle that contains my breakfast/lunch/dinner.
It is empty on the picture, but when it's time to eat,
it is filled with
YH Flore aka "stinky milk" .
After that, I felt in a trap.
I was called for the usual "clean the pus in open scar", but 3 doctors were waiting for me.
Me> "Usually, one doctor is fine for this, so why is there so much people this time ?"
Doctor> "Don't worry. Other doctors just want to see how to clean your scar."
Hum ... weird.
After cleaning the scar, it was clear it was a trap when a doctor said something like "by the way, let's change your feeding tube".
Removing the old one was not very funny, and putting the new one was quite painful .
But ! While doctors prepared new feeding tube, I could enjoy around 3 minutes without feeding tube between my nose and stomach 
Read more Treatment report (2014/08/07)
Today, I had the scar in my mouth (where pus accumulates) cleaned 3 times instead of 2 :]
And, one week ago, doctors "opened" skin close to my left ear in order to remove pus, because it is linked with mouth's inside.
As everything is now clean around my ear, they decided to close skin by using negative pressure wound therapy. It looks like the following device :
(thank you wikipedia)
Tube is connected between my scar and this device, and negative pressure (like vacuum cleaner, but very very very very low) is applied to the scar so that it can close.
Around one week is required until I can get rid of this device.
Too bad I can't use the same technology to close scar in my mouth
Read more Treatment report (2014/08/06)
Breakfast (water + "stinky milk" packs) lasted from 9:00 to 13:00 -_-
The reason it was so long is that usually I receive first (by tube from nose directly from stomach) water only, then "stinky milk", which is kind to my stomach.
But this morning, nurse mistook and mixed water and "stinky milk", and consequently I was near from nausea because of directly receiving strong "stinky milk" first.
YH Flore, the so-called "stinky milk"
It contains milk, honey, various fish oils, etc
I receive 3 packs like this at every meal.
To compensate this bad day, I took a shower before going to sleep
Read more Treatment report (2014/08/05)
First mouth rehabilitation after the week-end. I feel I can drink a little more than before, but it is just a difference of 10 spoons -> 15 spoons ... I can't drink water cup, yet.
In comparison with last week, less pus seem to come from my mouth, and doctors are finally starting to speak about scar's closing over process :]
I am in 4 people room, everyone is separated from other people by curtains, and my roommates (~60 yo, me=30yo) are quite fun : when one start to fart, another one start to fart and so on. It feels like a concert 
Read more Treatment report (2014/08/04)
