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Treatment report (2014/08/13)

Written by cafealpha no comments
Today was a good day full of adventures !

During rehabilitation, I could drink 32 spoons (nearly half a cup) of water without choking so much, which is an highscore until now

During the afternoon, doctor removed my "game gear", and told I no longer need it because scar near my left ear is closed :]
Just after that, I felt in a trap set by the doctor :
Doctor > "let's verify how well you can gulp jelly"
Me > "Does it mean that you will put a camera from my nose to my throat ?"
Doctor > "Yes, of course"
I couldn't escape, it was painful, especially when the doctor said "Well, your feeding tube prevent camera from going farther than your mouth. I will have to remove your feeding tube in order to continue verification".
Me > "Does it means you will remove feeding tube, put camera one more time, and then put feeding tube back ?"
Doctor > "Right. You understood well."
Me > T.T
data/images/20140813_ear_scar.tb.jpg
Here is what the scar looks after removing the "game gear ".
The blue tube on the left is my feeding tube.

But ! After removing tube, and verifying how well I can gulp jelly, doctor said "You don't gulp jelly so bad ... do you want to continue to use feeding tube ?"
Me > "No ! No more feeding tube !"
Doctor > "OK, you will drink ensure can from tonight"
Me > "Yeaahhh !"

So my first taste after one month without eating anything from my mouth was :
 - A grape flavour jelly, one spoon only
 - Horrible taste medicine ... I can't gulp capsule medicines, so their contents are put in water and I have to drink it, but it seems that medicine designers absolutely don't care about the taste of what capsule contains >_<
 - "Ensure Liquid", vanilla taste, 2 cans. I drank them by using small watering pot-like thing, and didn't choked at all
data/images/20140813_ensure.tb.jpg
Ensure liquid

Because I can't drink easily from can/cup/whatever, the watering pot-like thing helps a lot, because it pours liquid deep inside the mouth, making it easy to gulp after that
data/images/20140813_wateringpot.tb.jpg
"Joro" aka Mr waterpot

One bad point about the fact I don't have feeding tube is that I can't procrastinize on my laptop while eating ^^;

Read more Treatment report (2014/08/13)

Treatment report (2014/08/07)

Written by cafealpha no comments
Shower this morning, yeaaah !
Because of scars, feeding tube and my new negative pressure device, I can't shower around head, but it was better than nothing.

BTW, here are some pictures of what I currently carry with me :
data/images/20140807_friends_to_carry.tb.jpg
negative pressure device
I nicknamed it "game gear"

data/images/20140807_end_of_dinner.tb.jpg
Bottle that contains my breakfast/lunch/dinner.
It is empty on the picture, but when it's time to eat,
it is filled with YH Flore aka "stinky milk" .


After that, I felt in a trap.
I was called for the usual "clean the pus in open scar", but 3 doctors were waiting for me.
Me> "Usually, one doctor is fine for this, so why is there so much people this time ?"
Doctor> "Don't worry. Other doctors just want to see how to clean your scar."
Hum ... weird.

After cleaning the scar, it was clear it was a trap when a doctor said something like "by the way, let's change your feeding tube".
Removing the old one was not very funny, and putting the new one was quite painful .
But ! While doctors prepared new feeding tube, I could enjoy around 3 minutes without feeding tube between my nose and stomach

Read more Treatment report (2014/08/07)

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